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希望每个看到这个po的都可以捐rm10给我,每个小步都可以让我迈进一步。
你的一個share和like,对我很重要!!!
我真的很需要这笔筹款尽快到中国中山医院治病。筹款了几天已经达到三十多千,但是距离我要到中国的医院治疗的费用还相差一大截。
请大家把我的故事分享给更多人知道,也谢谢所有捐款给我的热心人士,我会努力对抗这个顽强的克隆氏症。
我从一个八十多公斤的胖妞,变成不到四十公斤的骨头人。我的克隆氏症已经破坏了我身体整个消化系统,消化系统指的是从喉咙开始到屁股洞,我的屁股开始每天都在流脓。克隆氏症,是指免疫力出现问题,去攻打自己的消化系统,而这个病,比癌症更严重,它不会好回,只会慢慢地在折磨着我,然后病患就因为身体缺乏营养而死去。现在的只能在中国中山结合中西医的医疗,把我的病情压抑下去,让他不再恶化。
其实,想了很久,到底应该写这个po吗?
我是克隆氏症病患,在马来西亚,每两百千个人只有一个。我从09年病倒到现在,医生一直把我当胃病医,直到12年发现原来不是胃病,是小肠要爆了。结果开刀把小肠切了42cm,当时的小肠已经薄得像tissue一样,还好没有生命危险。
12年开刀地方开始发炎,结果大肠小肠内有三个地方变窄。我不能吃任何high fiber食物,因为食物通不过。因为肠道细得像头发一样。
当痛折磨我时,是大概每十秒一次,痛得死去活来,也吃不下,可以几天内连一口水也喝不下,喝一口水一桶水,每天都泻十多二十次,大部份时间都只能躺在床上。
在中国治疗时,厕所都是蹲着的,我根本没力气起来,都是妈妈抱我起来的。最离谱的一次是我大号了,在医院厕所爬出来。脚根本没力气,一级楼梯都上不到,好几次都在马路旁因为脚抬不起来而向后跌,弄得头破血流。
曾经在菜市跌倒,五六个人来扶我都站不起来。
同善医院的医生唯有为我打类固醇,但根本压抑不到身体的发炎。我的病势是自己的免疫系统攻击消化系统,医生说再不能就把大肠小肠都切了。但是马大教授说我还年轻,不要做这种手术。同善医院和马大就像我第二个家。
结果一直不停在外面看中医,买产品,买所谓的箭猪枣都被骗了不少钱,根本都没有效。应该说,不但没有效,而且越来越严重,一直不停住院。爸妈的积蓄都花光了,还想着可能要把我们住着的小公寓卖了。我的健康卡是旧款的,一生人只能claim90千,我也用到所剩无几了。
直到去年去中山医院医两次,我病情有好转,但是过后我拖得太久没去打针吊药,又再复发,而且更严重。进了两次医院,瘦的剩下三十多公斤,像个非洲难民般。医生说我会因为没有营养而被折磨死去。
结果最后次进第二次进同善医院,医生吊药令我皮肤敏感,花了好几个月都不能好回,全身严重脱皮和肿,晚上睡不到,因为晚上特别痒。然后被逼又再进院,才发现原来我对albumin过敏,当时奶奶又去世,我连基本的孝道都尽不到。
DR KUAH 说我太弱了,骨头也开始变脆。我真的连提起脚走路的力气都没有。坐飞机到中国治病,在机场里都是用轮椅的,多少路人投来异样的眼光。
我病了快接近十年,想过要放弃,每天根妈妈说我想死,因为我根本只能躺在床上像个废人。妈妈辛苦的照顾我,把教车工作给放了,专心照顾我。让我感觉我自己更像一个废人。和妈妈说让我死吧,把我烧了撒在大海。妈妈哭着说她都没放弃我,我为什么要放弃自己呢?我不想看到妈妈每天以泪洗脸。
现在我要去的医院,是十大医院之一。他们医疗设备先进,中西合拼。医生要我在那里逗留至少一年,整个医药费用大概四百多千。
我真的拿不出这笔钱,所以才开帖请大家帮帮忙。
现在的我没有假发都不敢出去,头发掉太多了路上的人都会对我指指点点,批评我太瘦和没头发,真的很伤我。
多多益善,谢谢大家,谢谢各位善心人士。
Hong leong bank
Choo soo fun
245-0000-9916
Your share and like, it's important to me !!!
I really need to raise some fund as soon as possible to the Chinese hospital in Zhongshan. Fundraising for a few days has reached more than thirty thousand, but there is still a huge gap with the medical cost needed
Please share my story to more people know, but also thank all the donations to friends that has been donated, I will try to fight this chronic disease.
I am from a more than 80 kilograms of fat girl, into less than forty kilograms. My disease has destroyed my whole body especially the digestive system, the digestive system is from the throat to the annal, my anal began to pus everyday. Crohn's disease refers to the problem of immunity, to attack their own digestive system, and the disease, more serious than cancer, it will not be able to recover, but it will only slowly tortured me, and then the patient will die due to lack of physical Nutrition. Now only if I am able to be treated in Zhongshan, China combined with Chinese and Western medicine, my condition will be under control.
I am a Crohn's disease patient, and in Malaysia, there are only one for every two hundred thousand people. I fell from the 2009 to the present, the doctor has been treated it as my stomach disease, until 2012 they found that is not stomach, but the small intestine is about to burst. And the 42cm of small intestine were removed, when the small intestine has become very thin, but fortunately no life-threatening.
I can not eat any high fiber food because the food can't pass through the intestine. Because the intestine is as thin as the hair.
When the pain tortured me, is about once every ten seconds, most of the time I can only lie in bed.
In China, due to it is squatting toilet, I don't even have the strength to stand up. I always needs my mother to hold me up. Feet did not have the strength, I can't even lift my leg and step on a staircase step. And sometimes due to this reason, I lose balance and fell backward, and hit my head
Tong Shan hospital doctors gave me steroids, but simply not suppress the body's inflammation. My disease is their own immune system to attack the digestive system, the doctor said worse case, I have to remove the whole intestine. But Professor Ma said that I was young, do not do this surgery. Tong Shan Hospital and Ma Da is like my second home.
I tried chinese medical treatment, buy products, buy the so-called arrow pig juvenile, simply no effective. It should be said that not only ineffective, and it became more serious, has been kept in hospital. Mom and Dad's savings are spent, but also thinking about the need to sell our small apartment. My health card is old, life can only claim 90 thousand, it has been used up. Until last year to Zhongshan Hospital, twice , I have a better condition, but after I dragged too long did not go back for treatment, and then relapse, and more serious. I am now left more than thirty kilograms, like an African refugees. The doctor said I would be tortured to die without nutrition.
DR KUAH said I was too weak, the bones also began to brittle. I really did not even have the strength to lift my feet.
I was sick for almost ten years, thought to give up, I told my mother I want to die, because I can only lie in bed like a waste. Mother have to take care of me, scarify her work, and concentrate on taking care of me. Let me feel like I am more like a waste. Mother crying that she did not give up on me, why should I give up myself? I do not want to see my mother crying everyday.
Now I want to go to the hospital, is one of the top ten hospitals. Their advanced medical equipment, Chinese and Western combination. The doctor asked me to stay there for at least a year, the whole medical costs about four hundred thousand.
I really can't afford it, so I would like to ask for your help.
Thank you very much, thank you kindly.希望每个看到这个po的都可以捐rm10给我,每个小步都可以让我迈进一步。
你的一個share和like,对我很重要!!!
我真的很需要这笔筹款尽快到中国中山医院治病。筹款了几天已经达到三十多千,但是距离我要到中国的医院治疗的费用还相差一大截。
请大家把我的故事分享给更多人知道,也谢谢所有捐款给我的热心人士,我会努力对抗这个顽强的克隆氏症。
我从一个八十多公斤的胖妞,变成不到四十公斤的骨头人。我的克隆氏症已经破坏了我身体整个消化系统,消化系统指的是从喉咙开始到屁股洞,我的屁股开始每天都在流脓。克隆氏症,是指免疫力出现问题,去攻打自己的消化系统,而这个病,比癌症更严重,它不会好回,只会慢慢地在折磨着我,然后病患就因为身体缺乏营养而死去。现在的只能在中国中山结合中西医的医疗,把我的病情压抑下去,让他不再恶化。
其实,想了很久,到底应该写这个po吗?
我是克隆氏症病患,在马来西亚,每两百千个人只有一个。我从09年病倒到现在,医生一直把我当胃病医,直到12年发现原来不是胃病,是小肠要爆了。结果开刀把小肠切了42cm,当时的小肠已经薄得像tissue一样,还好没有生命危险。
12年开刀地方开始发炎,结果大肠小肠内有三个地方变窄。我不能吃任何high fiber食物,因为食物通不过。因为肠道细得像头发一样。
当痛折磨我时,是大概每十秒一次,痛得死去活来,也吃不下,可以几天内连一口水也喝不下,喝一口水一桶水,每天都泻十多二十次,大部份时间都只能躺在床上。
在中国治疗时,厕所都是蹲着的,我根本没力气起来,都是妈妈抱我起来的。最离谱的一次是我大号了,在医院厕所爬出来。脚根本没力气,一级楼梯都上不到,好几次都在马路旁因为脚抬不起来而向后跌,弄得头破血流。
曾经在菜市跌倒,五六个人来扶我都站不起来。
同善医院的医生唯有为我打类固醇,但根本压抑不到身体的发炎。我的病势是自己的免疫系统攻击消化系统,医生说再不能就把大肠小肠都切了。但是马大教授说我还年轻,不要做这种手术。同善医院和马大就像我第二个家。
结果一直不停在外面看中医,买产品,买所谓的箭猪枣都被骗了不少钱,根本都没有效。应该说,不但没有效,而且越来越严重,一直不停住院。爸妈的积蓄都花光了,还想着可能要把我们住着的小公寓卖了。我的健康卡是旧款的,一生人只能claim90千,我也用到所剩无几了。
直到去年去中山医院医两次,我病情有好转,但是过后我拖得太久没去打针吊药,又再复发,而且更严重。进了两次医院,瘦的剩下三十多公斤,像个非洲难民般。医生说我会因为没有营养而被折磨死去。
结果最后次进第二次进同善医院,医生吊药令我皮肤敏感,花了好几个月都不能好回,全身严重脱皮和肿,晚上睡不到,因为晚上特别痒。然后被逼又再进院,才发现原来我对albumin过敏,当时奶奶又去世,我连基本的孝道都尽不到。
DR KUAH 说我太弱了,骨头也开始变脆。我真的连提起脚走路的力气都没有。坐飞机到中国治病,在机场里都是用轮椅的,多少路人投来异样的眼光。
我病了快接近十年,想过要放弃,每天根妈妈说我想死,因为我根本只能躺在床上像个废人。妈妈辛苦的照顾我,把教车工作给放了,专心照顾我。让我感觉我自己更像一个废人。和妈妈说让我死吧,把我烧了撒在大海。妈妈哭着说她都没放弃我,我为什么要放弃自己呢?我不想看到妈妈每天以泪洗脸。
现在我要去的医院,是十大医院之一。他们医疗设备先进,中西合拼。医生要我在那里逗留至少一年,整个医药费用大概四百多千。
我真的拿不出这笔钱,所以才开帖请大家帮帮忙。
现在的我没有假发都不敢出去,头发掉太多了路上的人都会对我指指点点,批评我太瘦和没头发,真的很伤我。
多多益善,谢谢大家,谢谢各位善心人士。
Hong leong bank
Choo soo fun
245-0000-9916
Your share and like, it's important to me !!!
I really need to raise some fund as soon as possible to the Chinese hospital in Zhongshan. Fundraising for a few days has reached more than thirty thousand, but there is still a huge gap with the medical cost needed
Please share my story to more people know, but also thank all the donations to friends that has been donated, I will try to fight this chronic disease.
I am from a more than 80 kilograms of fat girl, into less than forty kilograms. My disease has destroyed my whole body especially the digestive system, the digestive system is from the throat to the annal, my anal began to pus everyday. Crohn's disease refers to the problem of immunity, to attack their own digestive system, and the disease, more serious than cancer, it will not be able to recover, but it will only slowly tortured me, and then the patient will die due to lack of physical Nutrition. Now only if I am able to be treated in Zhongshan, China combined with Chinese and Western medicine, my condition will be under control.
I am a Crohn's disease patient, and in Malaysia, there are only one for every two hundred thousand people. I fell from the 2009 to the present, the doctor has been treated it as my stomach disease, until 2012 they found that is not stomach, but the small intestine is about to burst. And the 42cm of small intestine were removed, when the small intestine has become very thin, but fortunately no life-threatening.
I can not eat any high fiber food because the food can't pass through the intestine. Because the intestine is as thin as the hair.
When the pain tortured me, is about once every ten seconds, most of the time I can only lie in bed.
In China, due to it is squatting toilet, I don't even have the strength to stand up. I always needs my mother to hold me up. Feet did not have the strength, I can't even lift my leg and step on a staircase step. And sometimes due to this reason, I lose balance and fell backward, and hit my head
Tong Shan hospital doctors gave me steroids, but simply not suppress the body's inflammation. My disease is their own immune system to attack the digestive system, the doctor said worse case, I have to remove the whole intestine. But Professor Ma said that I was young, do not do this surgery. Tong Shan Hospital and Ma Da is like my second home.
I tried chinese medical treatment, buy products, buy the so-called arrow pig juvenile, simply no effective. It should be said that not only ineffective, and it became more serious, has been kept in hospital. Mom and Dad's savings are spent, but also thinking about the need to sell our small apartment. My health card is old, life can only claim 90 thousand, it has been used up. Until last year to Zhongshan Hospital, twice , I have a better condition, but after I dragged too long did not go back for treatment, and then relapse, and more serious. I am now left more than thirty kilograms, like an African refugees. The doctor said I would be tortured to die without nutrition.
DR KUAH said I was too weak, the bones also began to brittle. I really did not even have the strength to lift my feet.
I was sick for almost ten years, thought to give up, I told my mother I want to die, because I can only lie in bed like a waste. Mother have to take care of me, scarify her work, and concentrate on taking care of me. Let me feel like I am more like a waste. Mother crying that she did not give up on me, why should I give up myself? I do not want to see my mother crying everyday.
Now I want to go to the hospital, is one of the top ten hospitals. Their advanced medical equipment, Chinese and Western combination. The doctor asked me to stay there for at least a year, the whole medical costs about four hundred thousand.
I really can't afford it, so I would like to ask for your help.
Thank you very much, thank you kindly.
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